This post is a collection of writing that started with a prompt for the Isolation Journals, a writer’s group that I joined early in the first lockdown of 2020. I didn’t realize it at the time, but I was already writing about my brain tumour. I’ve been jotting down/intermittently journaling my experience. Here are some of my reflections on this terrible, remarkable journey.
April 2020
Thin Places – A writing prompt for the Isolation Journals
“Often, “thin places” are literal places, geographical locations that feel holy or otherworldly, but you could also imagine these kinds of thresholds popping up anywhere: in a hospital room, in a bar, in your apartment, in your relationship, in you.
The title of my book, Thin Places, comes from a notion in Celtic mythology that the distance between our world and the next is never more than three feet (i.e. just a little more than an arm’s reach away). There are “thin places” where that distance shrinks and then vanishes, where you can glimpse some other world or way of being for a brief moment. Often, “thin places” are literal places, geographical locations that feel holy or otherworldly, but you could also imagine these kinds of thresholds popping up anywhere: in a hospital room, in a bar, in your apartment, in your relationship, in you. A thin place may also be a moment, a time when you were briefly suspended between a world/life that you knew and something totally new, different, awesome, frightening.”
– Jordan Kisner

May 2020
Displaced
– Sarah Zipp
When I was a kid, one of my chores was to back the car out of the garage in the morning (80s kid). Afterward, I would stand in the garage and think about how I was in the space where the car just was, but now it was empty and I stood here unharmed. I thought of my body tangled up in the metal of the car. It felt weird and uncomfortable in my gut. I thought of a science project measuring displaced water. Mass and matter and volume. Maybe that was a Thin Place.
On the bubble. Displaced. Thin Place. It happens mostly when I’m alone in nature. The wave of heat crashes across my face, settling across my temples and floating like sea foam, leaving a knot in my gut. Somehow I know this exact place but in a different way. Déjà vu? I feel wobbly and weak. Panic? I feel the presence of someone else, or is it a different me? Like I’m in a dream, trying to figure out if all of the characters are actually me.
These days, I think a lot about boundaries and borders, thin lines on a map. Six years ago we took a blind leap and moved our family of four humans (+ cat and dog) abroad. The Netherlands is called the low country for a reason, much of it is below sea level and land was reclaimed from the sea. Sandbags and canals created new land to live on. It literally is a Thin Place. How can people reclaim land from the sea? Who’s land is this to claim? Clearly not ours.
(Insert pic of moving bags at airport)
It was in the Netherlands that I first remembered that feeling in my garage. I wondered what it meant that my kids were growing up without a garage, or a car, or a house, or grandparents around. We were on our bikes, riding in the countryside. I felt the now familiar wave of heat crash down across my head and body. I saw us from above, through a child’s eyes. These tires are too thin to support a family. The wind was blowing us around. It was spring and the tulip fields were waving at us. Or were they shaking their heads, “nee?” My hands were cold but my head felt hot. My husband looked at me. We started signing “Journey” songs into the wind.

Time is also a funny Thin Space. Your morning is my evening. I can have FaceTime morning coffee with mom in Texas after lunch. Sometimes it feels like a do-over for the day. Other times, it makes me feel out of sync or like I’m missing something. On an autumn night in 2016, I went to bed hopeful and light. But when I woke up, America had chosen a conman. How did I sleep through this disruption in the universe? I cried on the couch with my daughter. Was this a Thick Place? I felt disconnected and distant from so much that I knew and loved. Or was it a Thin Place because two vastly different worlds were separated by so little. I felt more panic, like a door was closing on us. I held on to my daughter.
We opened a different door, to firmer ground in Scotland. This land is relentlessly beautiful. Here, more than anywhere before, I find myself in Thin Places. Is it the Celts or fairies or selkies? Is age 40 a magic age for opening portals to different realms? Have I watched too much Outlander? Is this a mid-life crisis?

I feel suspended in time and place. The past hangs heavy in the air here, but I’m as likely to encounter a Thin Place on a freshly gravelled path as sitting on a 500-year-old crumbling rock wall. Unsettling and growing more intense. A glimpse of other lives that could have been or still may be. It’s difficult to tell which is which and if I am the fool or the hero of these stories. Slowly, I am learning to ride this wave. But it’s still hard with so many feelings weighing me down. I am displaced and displacing, all at once. Mass and matter and volume.
October 2021
I don’t know why, but this prompt came up in my FB memories just now, even though it was not posted on this date. Maybe I do know why it found me again. Because time is passing and trying to tell me something, again. I completely forgot that I wrote about this. A lot has happened.
That feeling? The deja vu… I know now that those were aura seizures caused by a brain tumor that was growing on my right temple. It was pushing the button on my temporal lobe that controls memory (and eventually smell). I thought I was passing through realms, but it seems now it was all very technical and functional. I guess I was the fool, thinking I was touching some time-space void.
It was just mass and matter and volume. A glob of cells pushing up against my brain and bumping into things. Displacing things. Disrupting me and disturbing me. Displacing my whole life. A relatively tiny little thing causing so much trouble. A thin difference between normal life and whatever this new version of life is.

I can’t stop thinking about this passage and who I was before I knew I was a person with a brain tumour. I was a healthy person, an athlete, a “young” mom. A Strong Woman. It was a benign meningioma and removed, with minimal complication on February 19th, 2021. Alone in a hospital bed during the Covid second wave. They tell me I’ll recover “fully” but I know I’ll never be the same person who wrote that Thin Places story.
That’s ok. I’ve shed dozens of versions of myself over the past (nearly) 42 years. But this time it’s different. This is a before and after that I’ve never known. And it’s all wrapped up in time and futures and pasts that I can’t untangle.
I’m a teacher. Last fall, before I knew about the clementine sized tumour, I recorded video lectures for my students (university). This fall, as I returned from 6 months of medical leave, I started watching these videos again to prepare my classes. Rage. Sadness. Disgust. How could I sit there in those videos – blah blah blahing on, all while this horrible thing was happening? I screamed. My world was about to come crumbling down and I was sitting there nit-picking about word counts on an assignment. Stop wasting time on trifling shit!
I’ve tried to sort through why I was so mad and saddened by the sight of pre-catastophe me. I think it’s this- How will I ever know that I’m not that fool again? How will I trust my body, this world, not to fall to shit? I felt betrayed.
A friend who also survived a meningioma brain tumour told me: That you, on the screen. That’s the person who was strong enough to get you through this. She’s right. And I’ll be the me who is strong enough to get through the next round of awfulness that comes my way. But will I be wise enough to stop worrying about small shit in the meantime? That’s unclear.
People have always considered me strong. Strong-willed and physically strong. Being “mentally tough” is a badge of honor for us Schmidtheads (my birth name is Sarah Schmidt).
January 2022
Over the past few months, I’ve been (somewhat) quietly marking the milestones from last year. It was October when Aaron (my husband) heard a story on the radio about a woman who was having the exact same symptoms as me – waves of déjà vu and an intense metallic smell. She was having aura seizures from a brain tumour. We took this information to my doctor, who I had been telling for nearly 2 years that something was wrong. She tried to help – trying anti-anxiety medication and other remedies to sooth my obviously stressed-out academic mind. Hearing this new input, she referred me to a neurologist. It all unfolded quickly from there. An abrupt, jarring turn in our lives. All set on the backdrop of a global pandemic and our own family financial crisis as Aaron’s tourism buisness was crushed by lockdowns. A crisis within a crisis within a crisis – a Turducken of Crises.
December 16th 2020
Neurologist confirms I am having (textbook) aura seizures. He schedules an MRI for after the holidays. I now “have” a neurologist. He asks me to surrender my driver’s license to the DVLA (the DMV of the UK). I’m not allowed to drive until we can resolve the seizures. Over a year later, my seizures are long gone, but I’m still not allowed to drive.
January 4th 2021
I go for an MRI at the hospital. According to Covid protocols, Aaron can’t come in. He drops me at the front door and I scurry through the freezing rain to the covered entrance. A porter is there to guide me to the correct ward, avoiding the Covid zone. Aaron waits outside in the car on this cold grey day. While I’m in, the sun sets (mid-afternoon).
I’m not claustrophobic and have had an MRI before, so I’m not too bothered. They ask if I want to take my mask off. I say no. They put the big helmet box thing over my head and I go “tubing” for the first time on this journey. (I’ve learned from brain tumour groups that we call getting an MRI “tubing”). After 15 minutes or so, they pull me out to inject the dye in my arm. I hear one of them say “we saw something.” Wait, what? I ask what they saw. “It’s ok,” the nurse says. “We just need to get a clearer image with the dye.” I freeze. They are ready to put me back in. I don’t take my mask off. They put the helmet on. But now I’m crying and it’s gross and hot in these layers of containers on my head. They ask me if I’m ok. “Do you need a break?” I say “no.” I get on with it. I’m good at getting on with it.
Outside, Aaron is waiting in the car near the entrance. I make the decision not to say anything about what happened. It’s raining hard and the roads are dodgy. I am afraid the uncertain, scary news will make him a less safe driver. I bite my tongue and put on some Taylor Swift. I tell him when we get home so we can freak out in safety. We decided not to look up stuff on WebMD.
January 5th 2021
Aaron and I take the dog out for a walk in a nearby park. It’s not raining today and the sun is even shining a bit. Normally, this is cause for celebration in the dreary Scottish winter. But we are still unnerved by the events yesterday.
My phone rings and it’s the neurologist. He calls to say he wanted to reach me right away, as he knew I’d be worried. I have a mass attached to the lining of my brain. It’s called a meningioma. It’s a clear explanation of the seizures. This is good news – because often seizures are caused by complicated, difficult to resolve problems. I will be referred to a neurosurgeon to see about having it removed. It’s in a very accessible position, just over my right temporal lobe. He doesn’t use the word “tumour.”
At first, I feel relieved. He sounded very positive. I try to explain it to Aaron, but I don’t really understand it myself. My mom calls and I cheerfully tell her something about it and tell her I’ll call back later. We walk home and look up “meningioma” online. That’s when we figured it out – I have a brain tumour. Holy shit!
January 6th 2021
A violent mob attacks the US capitol building in an attempt to upend democracy as we know it. I watch in shock. My daughter calls it “the stupid Hunger Games.” I am confused about what the hell is going on inside my head and everywhere else.
Less than two months later, I’ll be in the hospital undergoing major brain surgery.
January 11th – 14th 2021
I somehow pulled myself together enough to record a series of video lectures for my online undergraduate class to students in Singapore, Managing the Business of Sport. I wouldn’t teach that class, but I didn’t want to dump it all on the colleague who would take over. I cared about the students and the colleague, but it stressed me out to do it. I was so disappointed I couldn’t go to Singapore due to Covid, two years in a row teaching it online. After I finish the videos and post them to our online course system, I go on medical leave. I was away from work for 6 months.
Watching it one year later, as I prepare to teach that class again, I can’t believe how composed I looked. Nice sweaters, hair neatly straightened and my world map backdrop. I was even passionate about diversified revenue streams and strategic management planning. I recall taking care to make it all look normal. Maybe I just needed to feel normal. I am a Very Strong Woman.
At this point, I start experiencing moments of rage. Why is this happening to me? Why can’t I catch a break? (Although I realize I am a very fortunate/blessed person overall, there have been a series of massive challenges/heartbreaks these past few years). I am due a break. A chance to rest, recover. A chance for peace and calm. But now this. I envision standing in an old, dusty kitchen. It looks like it’s from the 70s. I have a sledgehammer. I go nuts on the kitchen, busting up cabinets and countertops with all my might. I wish I had a demo project. These visions will continue post-op, for probably about another 6 months.
Early February 2021
I am assigned a neurosurgeon and we go to Edinburgh to meet him. On the way from our house, we pass by an iconic Scottish landmark, the Kelpies. The Kelpies are giant metal sculptures of two horses, just their heads. One is looking up at the sky and the other has his head down, facing the motorway that passes by. They are 100 feet tall. As we pass by, Aaron says, in a Beavis and Butthead type voice, “hey Sarah. Don’t worry, everything is gonna be ok.” Then in a slightly different, but equally as goofy voice, he says “yeah, Sarah. It’s gonna be fine.!” And from that moment onward, these stoner-dude Kelpies have always wished me well as I pass by. Aaron drives me to dozens of check-ups and check-ins to the hospital. He makes sure that the Kelpie bros always take the time to chat. It lifts my spirits, every damn, stupid time.

There are a million zillion other ways Aaron made things just a little bit better, easier, less stressful. He took on all the housekeeping, kid-admin, cooking and became the only car driver in the family (for 14 months) And another million ways he took on the hardest tasks, without complaint, to shield me from any unecessary burdens. I knew he was struggling, that he was keeping his emotional needs in check because I was the priority. Corny as it is, I do believe we are stronger for having endured this together. I felt loved and cared for at every step of the way thanks to him.
We meet my surgeon, the guy who will crack open my skull, Mr Kaliaperumal. He’s from India. Not gonna lie, I like this fact. Seems somehow more comforting that some guy named Fergus or Angus or Steve. But I am unnerved that he is not called “Dr.” It turns out, in the UK, that specialists as high ranking as he go by Mr. He is a doctor, a very good one. He is calm and collected, comforting and funny. He shows us the scan and we get to see the tumor for the first time. He is confident I will do well, I am young and healthy. There is a chance for stroke or seizure, and he has to explain what that would look like . There are a lot of things that can go terribly wrong in brain surgery, that was no surprise. Hearing them all laid out is upsetting, to say the least. It’s all a bit hazy for me. I can feel the walls closing in and can feel my pulse quickening. My eyes get blurry and for a second I think I’m going to pass out, but it was just the tears welling up. Aaron gently massaged the small of my back. We schedule the surgery for February 19th, less than two weeks away. I start calling the tumor Clem, because he’s the size of a clementine. We hate Clem.
At this point, I’ve told my parents and siblings, but no one else. We decide to tell the kids, but keep it very very very positive. They are worried, but ok. They seem to quickly forget and move on with their own dramas. It’s lockdown Part II, so we are schooling from home again. We go out sledding with with the kids and some friends. I feel some weird light-headedness and go home. I’m not sure if the light-headedness is from the tumor or if I’m now imagining symptoms. I begin telling a few close friends what is going on. Friends from high school, college, aunts, uncles, cousins and family friends. They are all awesome and supportive, some of them started a small fundraiser to deliver food and gift cards for when I’m in the hospital. Paws up, Wildcats. And it’s a great day to be a General, Gennies. Friends send me cool Dolly Parton mugs and t-shirts, another friend sends a funky Turducken mug in honor of my crises. One of my talented nerd friends from high school made this cool image.
[Insert Anthony’s Clem Star Wars battle]
With the surgery scheduled, I start to feel the preciousness of time. Knowing I’ll be laid up after the operation, I focus on getting as many walks in as posible. I meander the hills and along the river with my dog. Aaron joins us as often as possible. February is probably the dreariest of months in Scotland. We put on boots and hats. We walk and walk and walk. Walking will be my saving grace through all of this.

My mom is planning to come over from Austin to watch the kids while I am in the hospital and recovering at home. She is vaccinated and trying to sort through all of the paperwork to travel. It’s getting crazy, with a second wave peaking and travel rules ever-changing. Then a massive blizzard hits Texas, knocking out power for millions of people and making international headlines. This is the storm when Ted Cruz went to Cancun. Yeah, that storm.
Her flight is delayed, She can’t get new Covid tests scheduled for a new flight. She won’t be here in time for the surgery. The Scottish First Minister announces mandatory hotel quarantine for all foreign travelers. It’s all gone off the rails. In the weeks before the surgery, we are occupied with travel plans and Covid rules as much as the impending surgery. We take down my camper office and set it up for mom’s 10 day quarantine out here, parked in our side driveway.
These distractions might be a blessing in disguise, but looking back it makes me mad. That was my time for calm and comfort and attention. It was stolen, like so much else when you have an emergency in the midst of a global pandemic.
Our dear American expat friend, Wendy, steps up and takes over. She tells me not to worry about all the stuff at home – she’s got it. She will take care of the kids and pets. She gets Aaron a place to stay near the hospital in Edinburgh (with help from our fellow VCU Ram alums) and she will make sure my mom is cared for during her quarantine in our camper. Wendy gets shit done, so I know it’s true. I really don’t have to worry.
She goes shopping with another expat (Cindy) to Costco and they buy me cozy pajamas with button-down tops, so I don’t have to pull them over my cracked up head. Costco is an oasis for our unruly posse of Americans here. It’s an Embassy, but for retail. We could go there and “tailgate” with hot dogs and sodas with free refills from the cafe. I wish I could go with them. They send me silly pics of their trip and pick out 3 pajamas, one of them is leopard print. I’m gonna be best-dressed on the ward.
February 18th 2021
Aaron and I pack up to head to Edinburgh. We are staying the night in the rented house near the hospital (thanks again, Wendy). I have to check in at 7am tomorrow. Before we go, I tidy up the kitchen and scrub the toilet. I’m still mad about that last one. We say goodbye to the kids and head out. I hug them harder and longer than normal, but manage not to cry. I don’t want to freak them out. As soon as we leave, Wendy gets them junk food and they watch trash tv. Good call, Wendy.

In Edinburgh, we get take-out burgers and eat them on Portobello beach. It’s cold and windy. I am waiting for this to feel like something supernatural, but it’s ordinary and frustrating. The 5 Guys burger was really good though. We head back to the house and try to decide what to do. Obviously, we were both nervous. We were also tired and longing for distraction. We never said it out loud, but I think we were both trying to avoid thinking that this might be my last night on Earth. So we got cozy and watched a movie, my pick. I laid across the couch, my head on a pillow resting on Aaron’s lap. We watched Across the Universe and he pet my head, across the right temple that was going to be split open tomorrow morning. I envisioned that his hands were pulling away the tumor from the lining of my brain, loosening it up so it would be easier for the surgeons to remove it. I tried not to think about the consequences of their pulling and tugging at the lining of my brain, close to a major artery. The music from the movie washed over us and we both tried to feel at ease and filled with love, if also fear.
February 19th 2021 – Surgery day
It was a Friday morning. Is Friday the best day for brain surgery? We are at the Royal Infirmary of Edinburgh. I wonder if Ewan McGregor has ever been here.

Aaron was allowed to come with me to check in. We wait in a small, plain room. I change into a gown. A male nurse, with a bald head and tatoos down his arm, comes in to take some bloods, set some IV lines, etc. The poking and prodding begins. We are nervous. Again, I keep waiting for this to feel extraordinary but it keeps failing to rise above functionality. Another nurse comes in to do more needle stuff. “Sharp scratch,” they all say as they stab me with thick needles. My friend back in the US, Jenni, was a nurse who helped with these surgeries before. She told me if I was nervous to just pretend she was there and ask the nurse if I could call her Jenni. I told this new nurse. She said, sure, call me Jenni. The bald, tattoo guy piped in, “you can call me Jenni too. Whatever you need.”
I start crying and hold on to Aaron. I’m not ready to go yet. I think about how the Dutch prefer to say “Ik hou van je” over saying “I love you.” The literal translation is “I hold on to you.” Sometimes the Dutch do get it right. We held on to each other for a long while.
Mr Kaliaperumal walks by, cool as a cucumber. “There’s no need for crying. It’s gonna be fine,” he announces. He tells me how he just did this same surgery successfully yesterday, on a 70-year old woman. She is up and walking around. His confidence is catching, I feel better by the measure of one molecule.
Aaron and I hug goodbye and I go with girl nurse “Jenni” to another room. After a last bathroom stop, I was terrified I would pee during surgery or something, I lay down on a gurney. They ask if I want the relaxing drugs that will help while they do all the rest of the probing and prodding. Jenni (the real one) had advised me to “take everything they offer. There is no trophy for bravery here.” I take everything they offer. I quickly drift off, I think mid-sentence. Lights out until after surgery. I learned later that Aaron sat in the first room for awhile, finally allowing himself to cry. He went back to the rented house and rowed on a rowing machine for the entire duration of my 3 hour surgery, crying and rowing the worry away.
In the weeks before sugery, Aaron and I had made a plan for when I woke up after the surgery. He wanted to know if I was really ok, as in, I wasn’t some new person with a different personality. Brain surgeries can wreak havoc on personalities and memory. So he could know I was ok, I was to tell the doctor to tell my husband the surgery was a “great success.” If possible, I was to say this in a Borat voice. We always say “great success” in Borat voice over stupid, minor accomplishments. (Note – I actually like impressions of Borat more than I like Borat himself. Impressions of Borat, especially by Aaron Zipp, are the BEST).
I vaguely remember waking up to a doctor I didn’t know. I recall trying to tell him to tell my husband it was a “great success.” This memory is extremely blurry. I seriously doubt I communicated my point very effectively and I don’t think he relayed that message well. But they did tell Aaron it went well, and he notified my family. It was, indeed a Great Succes. No complicaitons, e.g. no seizures, no stroke. When I was finally able to call Aaron, I managed to weakly say “great success.,” in a feeble Borat-ish voice.
February 19th – 25th – In the hospital

The day after . . .

…in progress…stay tuned!
Notes for future writing: The shared room, piercing/stabbing lights, black and blue eye, jaw doesn’t work/can’t chew, shared bathroom, old man mumbling, audiobooks are my co-pilot, why did I bring real books?, Today I am a “Small Blue Thing” by Suzanne Vega, why are all the nurses named Jemma?, why are they serving bed-bound people caffeine?, becoming a perppermint tea dealer on the ward, best dressed on the ward, nap frenzy, Star Trek forehead, catheter fears and still can’t poo, loose wheelchair wheels sliding across the shower room. Aaron can’t come in, this sucks. Aaron snuck in, but got kicked out. Wandering the ward. Restless, but not bored. Too tired. Alone alone alone. Lilies. I walked up stairs. Get discharged, to the emergency room to get my pain dismissed, someone believes me, get re-admitted to hospital, get drained, get back out.
Out of the hospital: How does one go from a life defined by being the strong one to feeling made of glass? Brains and brawn are gone? I fell over/passed out picking up the dog. More Small Blue Thing. “You’ve become too precious” -Mr K. Bandage is off, my hair looks like the guy from the Cure. Mom/Nana’s home cooking is the medicine I need. Dog is my Co-Pilot, how walking my dog became the best therapy and only thing I had to do all day. Oops, I walked to far again (w/ Colin). The kids are alright. Wendy fed them trash food and tv, she’s awesome. Intrusive thoughts or insane in the membrane? This is PTSD Back to the “crying tree.” What happens when you look normal, recovered, but feel broken? Haircuts and headbands. Something’s wrong with my eye but nobody believes me. Does this headwound make my ass look big? Return to working out, cycling. Oops I worked out to hard and now have “old lady” knee. Back to work and pushing against the tide of “normalcy.” Do I miss being helpless?
Should we move back to America? Yes, I guess so. I think it’s better here, but nobody knows what happened and how/should I tell people?



















